November

It was mentioned to me tonight that someone checks my blog weekly and I have not been updating it so I figured I'd get everyone up to date.  Basically things are going well.  I'm on the tube feeding 18 hours a day, I cherish the 6 hours that I get a break from it. My last appointment I was told that I would probably be on it for a few months.   I know that I need it, but it is a big pain in the arse to have to lug my "backpack" around everywhere.  It seems to be working though, I'm slowly gaining some weight back.  According to my scale at home I'm almost up 10lbs since I left Spaulding.  I still really need to work on my eating and drinking though.  I've been sticking to soups for the most part and it's getting old really fast.  I had one more trip to the ER since I last posted.  My tube got clogged and while trying to unblock it I managed to make the tube explode.   Thankfully it was a somewhat easy fix, they slide the old tube out and slide a new one in.  Hurt like hell but at least I did not have to stay in the hospital or have surgery.  For that I am very thankful.  I don't have another appointment until the middle of December so I may not update until then.  Unless of course something exciting happens between now and then, but lets hope nothing does :-)  Until then take care ~ Barbara